We recently made a new friend named Liv, who has a very rare disorder called Nemaline Myopathy. Liv is just four years old and has almost no strength in her skeletal muscles, which makes it very hard for her to walk, talk, eat, and even breathe on her own. Because Nemaline Myopathy is so rare, there is no cure or treatment, and not much money to help find one. We made this short video to help raise awareness for Liv and people who suffer from Nemaline Myopathy.
To learn more, visit www.LoveLiv.org
Click below to share Love Liv's story to the world!